Dani has a very rare genetic disorder call Hurler's Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.
Thursday, April 7, 2011
We started out this morning rough with Dani complaining about her ears. She is already on antibiotics which should take care of ear infections. Grandma Boni came over to help with washing her hair and then we visited Ms Betsy and Mr Matt (Preschool). Our neighbor Sally brought a pink Easter Bunny over for Missy Miss. Then we received a cookie basket (with balloons) from my work. Thanks to all!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment