We also welcomed a new addition to the household. Our next door neighbor (Sally) ended up naming him Maximilian (Max). Love it!
Missy Miss goes back on the 15th for an Ortho follow up and I scheduled an eye exam to get her new glasses that day also.
Dani has a very rare genetic disorder call Hurler's Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.
Wednesday, April 6, 2011
New Addition - Day out for Missy Miss
There was quite a bit going on yesterday. I started spring cleaning (cleaning carpets). Dani was able to visit with her classmates for a bit. We plan to go back tomorrow to see Mr. Matt (Occupational Therapist).
We also welcomed a new addition to the household. Our next door neighbor (Sally) ended up naming him Maximilian (Max). Love it!
Missy Miss goes back on the 15th for an Ortho follow up and I scheduled an eye exam to get her new glasses that day also.
We also welcomed a new addition to the household. Our next door neighbor (Sally) ended up naming him Maximilian (Max). Love it!
Missy Miss goes back on the 15th for an Ortho follow up and I scheduled an eye exam to get her new glasses that day also.
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