"One Day At A Time" pops in my head mutliple times a day.
Missy Miss is doing really well and we go for both Orthopedic and Opthamology appts on Friday so I will have more updates then.
She is now on additional antiobiotics because she had issues with her ears last weekend and she also pulled off her Steri-Strips on her hips but we saw the peditrician on Monday and her incisions look great. Her peditrician also suggested getting a handicap sign (although Grandmas and I were already talking about it) so I picked that up today.
Dani has a very rare genetic disorder call Hurler's Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.
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