Dani has a very rare genetic disorder call Hurler's Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.
Friday, February 24, 2012
Spring is coming!
All is well at the Boni/Bullock house. I would apologize for the late update but there are other things more important then a blog. Like Sanity! Missy Miss had her adenoids and new ear tubes placed in December. She also continues with her IVIG although we were able to skip January. Late January she had surgery to correct her eye muscle and to get data on possible Lens Implants.
We go back to the cardiologist and Opthamologist in April to see were we are in in both of those.
She did break a tooth last night (baby tooth) and I am trying to get her into the St. Louis Children's Dental to see about that. Overall she is doing awesome in all regards.
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