The MPS Society has put together a run in New York that all the families can participate in simply by donating as little as $5.00 and as much as you would like. It is tax deductible. The runner that is selected will have a shirt with Dani's picture on it. Please consider donating to raise money for research and a better life for our MPS kids. More info below
For those that wish to donate via paypal can do so below!
Dani has a very rare genetic disorder call Hurler's Syndrome or MPS I. Its part of a group of storage disorders called Lysosomal Storage Disorders. You can find out more information at MPSSociety.org You can see the first part of her journey on danicaboni.blogspot.com. This is the beginning of a new journey.
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